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Theresa Eddy from Walnut Cove, NC wrote on December 16, 2016 at 10:33 am:
In 2004 at age 49 I collapsed just after returning home from shopping . I never had a headache in my life. But I did have symptoms, that I only realized later. For many weeks before, I experienced episodes of elevated BP with a sensation of air bubbles running through my head. It felt strange but not painful so I ignored it. Then I woke-up in the hospital not remembering anyone? A headache doesn't always occur, don't ignore any feeling in your head!
Marissa from Northumberland UK wrote on December 16, 2016 at 8:24 am:
Hi my name is Marissa. I am suvivor of ruptured aneurysm (SAH). In the evening of 28th sept 2016. I was on my spin bike at home, thought five more minutes then I'd go for bath. Then got this headache like no other, was like having a pick axe hit into your head. As I got off I thought god what is that. I felt like a was intoxicated, using the walls to support myself going along the passage, i finally collapsed outside the bathroom where my 12 yr old daughter was. I was lying unconscious then I heard her scream and come too, I found every ounce of strength I had crawled to my front door, opened it knocked on my neighbours door, when he opened it I begged him to help me. By this time my speech was slurred, I was vomiting, confused. Paramedics arrived done there checks diagnosed me with sickness and diarrhoea with migraine. Got me to sign some form to say that I understood by they wouldn't take me to hospital, bearing in mind I was confused !!! I lay in my bed for 4 1/2 days. My dad phoned my GP they came out diagnosed me with muscular strain or slipped disc. My sister came and said that she was gonna drive me too hospital herself as she had enough of me being throbbed off. When the next lot of paramedics came they couldn't believe I was in hospital, my bp was still really hard. They took me to the A&E were a doctor finally done a ct scan and I was diagnosed with bleed in my brain. I was transferred to another for surgery. The followed day they preformed angiogram locates the rupture and coiled it. Was in hospital for three weeks then discharged home. I am so grateful to the people who saved me. I'm so glad that I'm still here. On the 9th Nov my dad received a call from my uncle. My Cousin Colleen had been rushed into hospital with ruptured aneurism she then had a cardiac arrest and haemorrhaged they done scans but she had no brain activity. Her children of 9 & 12 made the decision to donor her organs. The worse day of my life. I Live with guilt everyday. She was only 31 Years old. It is a silent and deadly killer the more awareness made, maybe more lives saved. We did find out that it is heredity as my great grandad and granddad both died of haemorrhaging. Two of my aunts both had ruptured aneurysms and are still with us. That is 6 of us in total of what we know. Now I'm please to say that the entire family have to be checked. God bless those who lost there battle, and thank god for all of us who are still here to tell our stories. I too am wanting to help raise awareness in honour of my cousin.
Paula Long from Potomac Falls, VA wrote on December 15, 2016 at 9:58 pm:
First off I want to thank this foundation for making people aware of brain aneurysms 6/9/07 I was 47yrs old and I suffered a ruptured brain aneurysm on the tennis playing a match. I had never had a headache in my life and I was in excellent health. During the match I started to feel severe pain in my head radiating down my back and tingling in my legs and I started to see halos. I thought I was having my first headache ever and it was going to be a migraine. I missed a volley at the net and my partner stopped the match because I seemed very off. Then the nausea started they helped me off the court but I convinced them to call my husband to pick me up and take me to the emergency room near our home about 20min from the court. I was in and out of consciousness to the hospital. I was triaged and they did a CT and discovered the subarachnoid rupture but they could not treat me there. They told my husband I would probably not survive the flight to Fairfax Hospital and that he needed to say goodbye to me. I had to be airlifted to Fairfax Hospital in VA where Neurosurgeon Dr Jae Lim drilled a hole in my head to relieve the pressure. Then they decided that I could either have the bleed clipped via hemilectomy or coil the bleed done by a neuro radiologist. They ended up calling in Dr Putman to coil the bleed. I continued to seizure for 5 days due to vasospasms so it was decided that I need to have a shunt placed to relieve the high pressure a permanent programmable shunt was placed by Dr Lim. I spent 30 days in Neuro ICU but I was able to go home afterward because my sister and husband were able to take care of me 24/7. I had to learn to walk and talk again. It took me 5 months to go back to work as a veterinary technician. I have not had a headache since but my shunt has needed adjustments several times. I was able to stop taking anti seizure medication after 7 months and only had one seizure after I left the hospital. It was a tough recovery but the moral to my story is that if you have something so extreme happen to you call an ambulance so they can triage to the appropriate hospital. I was very lucky to have survived and my siblings have had scans done to make sure they do not have any aneurysms I lead a normal life now working 40 hours a week and play tennis 5-6 days a week. I attribute my survival to the healthy lifestyle I have always lived, excellent surgeons and nurses and wonderful family and friends.
Nancy from Arlington,WA wrote on December 15, 2016 at 9:26 pm:
I am so glad to see this site set up with the goal of making people aware of the signs of an aneurysm. I wish I would have had the information 21 years ago when I suffered mine. I had all the signs. I had experienced severe headaches , blurred vision, incidents of falling, and when I went to the Doctors...he told me I was just going through the "change of life". He gave me a hormone shot and sent me home. I had been suffering blurred vision and waves in my eyes for a couple of years. When I had surgery the Dr. told me that the aneurysm had been there for some time, because my system had caused it to calcify and had prevented it from rupturing. He told me I was a very lucky little girl...I ended up being sent by ambulance to Harborview, the trauma center in Seattle, WA because at the same time they found that my carotid artery on the left side was blocked 99.4 %. This resulted in a stroke and the loss of vision on my right side....After several days of testing...they did the artery surgery first and followed up 2 week later with the brain surgery. I was lucky enough to have the best brain surgeon from the University of Washington & Harborview Trauma Center. It has been 21 years and I am 72 and still going strong....Thank you for allow us to share our experiences and for the work you are doing to save even more victims of aneurysms.
robin concannon from bloomington wrote on December 15, 2016 at 1:37 pm:
April 26th 2000 I had Brain Surgery..Life was great ,I was newly married only 2 months. I started getting headaches and finally told my dr. About it . He gave me an M.R. I and they said I had 2 aneurysms on the right side of my head. During the surgery as they were CLIPPING them I had a stroke , my whole left side. I was in the Hospital for 28 days.Including rehab. My Brother had been in an accident years earlier and as a result died in his sleep of a burst aneurysm. Back then they did not think there was any Family history involved. After my surgery they tested everyone in the family. Remember this was back in 2000 for me. But watching Dr. OZ yesterday made me want to share, My headaches were intense but more like a pressure ,like someone pushing down on my head. I function fine but have diagnosis of having a TRAMATIC BRAIN INJURY, it does affect my memory in some ways and I am more Emotional but I see my Dr. regularly and am on medication. I wanted to thank Lisa's HUSBAND for doing this most awesome work. I had my surgery at Methodist Hospital in Indianapolis. Awesome Brain Surgeon Dr, Troy Payner. I know they have made Great stride in research on this subject since my surgery. I always tell people yes the pain is awful..Seek Help right away. I had 4 children NATURAL CHILDBIRTH ...no pain medicine, and that I would rather have all 4 they same day than to have to go through the Brain Surgery. I thank God they caught them BEFORE they Burst.Thanks again for setting up this Foundation for your Beautiful Wife Lisa, You Sir Are Saving Lives! God Bless You and Your Whole Family!
Wendy from Applecreek wrote on December 14, 2016 at 8:41 pm:
I am one of the few lucky ones who had the aneurysms repaired with no major bleeding. Two stents, located in the circle of wills. I also was diagnosed with a Chiari Malformation (brain herniation) Have you done any studies with survivors who were actively searching medical diagnosis when MRI was finally ordered? thanks for the foundation, great information!!
Maria from Glastonbury wrote on December 14, 2016 at 7:56 pm:
I lost my husband and father of my children, Dwight, four years ago to a brain aneurysm. He was 63. My husband was very disciplined in exercising, a life long martial artist, and ate extremely healthy. His family had a history of hemorrhagic strokes. His older sister had gone to see her doctor 2 years prior for ringing of the ears. The doctor, finding nothing, decided to do an MRI, where he discovered she had 2 aneurysms. They were able to operate and she continues in good health today. Knowing his family history, I had convinced him to see a neurologist. Unfortunately he never made it. He passed away days from his appointment. We had just entertained some friends, and while I finished cleaning up, he went up to bed. 15 minutes later, our kids and I found him unresponsive. If he had any of the symptoms described, we'll never know. What I do know is... I felt something was off in the weeks/days leading up to his death. Nothing clearly definitive.. slight, unusual forgetfulness, when we went for a walk, his gait was a bit off.. I made him go to his regular doctor, who did an EKG and found his heart healthy. We then made an appointment for the neurologist a couple weeks later, which he didn't make. So my advise is if you suspect anything, or feel something is not right, GO WITH YOUR GUT! If I had insisted he get an immediate appointment with the neurologist, he maybe would still be here.
Kimberly LaBella from Sacramento wrote on December 14, 2016 at 7:12 pm:
The morning of October 22nd, 2016, my sister and I found that my Father, in The bathtub after suffering a severe brain anurism. He was still alive, but was stuck paralyzed for over 45 minutes. We tried to save him was a MISTYIII trial, surgical procedure, that was headed up by John's Hopkins. It seeks to drain the clot that causes the brain damage. Needless to say, he died from complications on Nov. 7th, 2016. We were hopeful, but I still believe that it is shoes great advances for faster recovery. I'm saddened, and heartbroken, and want to help advocate for your foundation. Please contact me if you need volunteers for your cause. Thank you
Janet Manning from Schertz wrote on December 14, 2016 at 6:27 pm:
Several years ago, my mother had an aneurysm that ruptured. She went from having an extremely high IQ to having to learn to walk and talk again. She has had a long battle just to get back to being able to function. I have always suffered from migraines. It finally got to the point of not getting any relief. I had an MRI which showed that I had an aneurysm. Jan 3, 2015, I had mine coiled. I've done reasonably well but the headaches have never stopped.
Jennifer from Brentwood wrote on December 14, 2016 at 6:01 pm:
On Oct 14, 2016 I was working out in the local YMCA. I was taking a class that I had taken for 3 years. In the middle of a set of inclined chest pressed my THUNDERCLAP headache occurred. I did not know what was actually wrong but I took myself to member services to seek medical attention. By the time EMS arrived my finger were numb and not working, I was throwing up and my head was killing me. I was able to get to Williamson Medical where my Sports Med Dr - Dr. James Lohse met me. He met with the ER Dr on call and they decided to run a CT Scan. With the results of the Scan Dr. Lohse had me transported to St. Thomas West Medical Center and Dr. Spooner started my angio. By the time the angio was over it was determined that my subarachnoid hemorrhage had self healed and closed off. I did stay in ICU for 7 days while they monitored me. I have no negative effects from the bleed. I was sore and tight and thru PT I have been able to finally release all pain in my lower back and legs. I know that I was very lucky to self heal and that I have no lingering effects.
Ted from Morrison, OK wrote on December 14, 2016 at 5:54 pm:
They said I was supposed to die. On 10/31/2016 I suffered a sub arachnoid hemorrhage right behind my eyes. On top of that, I apparently had a grand mal seizure as well. I don't remember much though I do remember having the worst headaches I had ever experienced for three or four days before it happened. I went down in the shower that morning and my wife (Sarah) found me with the curtain hanging over me. Thank God she heard me. She called the first responder in our little town and he raced to get the truck. He put me on oxygen and called the ambulance. I ended up being life flighted to a hospital in Tulsa and they did coil surgery. I was there 14 days as they did trans-cranial dopplers and CT scans to check for vaso-spasm. Apparently, I am lucky. Though I don't believe that. God saved me. I have been told that 50 percent of all aneurysm cases don't make it. Both neurologists that saw me said that with the seizure added on I shouldn't have made it. But, here I am 74 days later writing this letter. I told you God saved me...for a reason. Of course, a lot of things had to happen at just the right time and directed by just the right people. I am so thankful for all the people that cared for me, prayed for me, and went above and beyond. So here I am, a miracle in the making. I am so sorry for all those whose story did not turn out like mine and they lost someone because of an aneurysm. I am so thankful that God gave me a second chance. I plan to use it to bring awareness to people about the signs and symptoms of a possible aneurysm as well as spread the good word that with God in our life, miracles do happen. I'm living proof.
Karole A. Keith from Marietta, GA wrote on December 14, 2016 at 5:30 pm:
I lost my beautiful sister, Belinda in 1977 at the age of 14, from a congenital brain aneurysm. Two weeks prior to the rupture, her pediatrician diagnosed Belinda with the flu. Her symptoms were headaches, throwing up and not feeling well. I was 19 at the time and remember this like yesterday. Belinda was in the 8th grade when her aneurysm ruptured at school during her lunch break. Dr. Cheek, head of neurosurgery at Texas Children's Hospital in Houston tried to save her life and could not. I remember him saying to us that he has a daughter the same age. Belinda's legacy lives on with two beautiful songs that have been produced by two very dear friends of mine. One is called, "Billy Goat" and the other "Everywhere". I am happy to share them with your foundation. Thank you for helping others recognize the importance of early detection of potentially fatal aneurysms. This is the link to the song, Everywhere in memory of Belinda, written and performed by Sonya Shell. https://soundcloud.com/sonyashell/everywhere-2016-written-by-sonya-shell?utm_source=soundcloud&utm_campaign=share&utm_medium=facebook
lilly from middletown wrote on December 14, 2016 at 4:45 pm:
Just watched the OZ show and it was very helpful..my story as an ER nurse began with a very dizzy morning of nausea and localized "ponytail pain" behind my left ear. I was convinced like so many just something I ate and slept the weekend away(well only 1 day of total exhaustion)...but 4 days later I took my b/p and it was high 150/90 and I self drove myself to the ER for further evaluation...CTscan clear...spinal tap clear...but the mri revealed an incendental small 2mm rt. opthalmic carotid anuersym unruptured. transfered to Providence hospital I saw the chief neurosurgeon who will follow yearly the aneursym with MRI with Dye to see if it progresses.Being a mother of 4 I feel like many who can just push thru feeling crappy...alot of us do. However so glad to see more information out there to help us understand this serious condition. I have no restrictions as of yet but the warning signs i will never wait again. I was told for the pain(unrelated to the unruptured aneursym was tylenol.But if the sudden waves of seasick nausea present themselves with blurred vision i will not ignore them,....I just hit 50 and pray medical progress will continue to advance to help those out there. god bless and thankyou for your foundation of awareness,,,,lilly
Leslie Martin from Baltimore wrote on December 14, 2016 at 1:04 pm:
Hello, my name is Leslie as you know. I found out this year in March that I have 4 Brain Aneurysms. One of them was measured @ 10 cm and the other 3 are smaller. I went to a surgeon @ a local hospital in my city. He did test that he needed to do. He told me where the Aneurysms were located as well as the surgery I well have. I was scared and devastated but, he assured me I was in good hands. The 10 cm Aneurysm procedure was done with a Pipeline Stint and Coil. I'm do for another surgery in January to remove the other 3. I thank God for my PCP who went further into getting me the test that I needed to find out what was wrong with me and Thank God that the Medical field has stepped up so much.
Pat from Fort Myers wrote on December 7, 2016 at 9:52 pm:
My cousin, Megan Phillips Aesch suffered a hemorrhagic stroke several years ago. Meg with the support of her husband and family as well as many friends, has never given up trying to regain parts of her pre stroke life. Meg's story has just been published - "I Tied My Shoes Today - Recovering from a hemorrhagic stroke" and is available on Amazon. An amazing story of courage, love and determination.
Audrey Mendez from Carle place ny wrote on December 2, 2016 at 7:34 pm:
I was released from the hospital today after coiling surgery for a brain aneurysm.i had no idea I had this..I actually went to a ear doctor for clogged ears..my ears were clear and he decided to do a MRI to make sure inside my ear was ok. Well to everyone's surprise the MRI showed the aneurysm. From there my primary Doctor sent me to do a MRA to be positive.From there I went to the neurologist who scheduled my surgery.i had the coiling done on Tuesday..Surgery went fine. Had to stay a few extra days but got home today feeling so grateful.The doctor does not know how long it was there. I had no symptoms at all.It is truly a silent killer. As I reflect on this week I am very emotional to know how lucky I was..To think I just went to check my ears. This is my second chance at life. I am going to spread the word about aneurysms..With you in mind Lisa I will try and enlighten everyone about it and let them know if you feel something different see your dr. Right away..R.I.P Lisa
Carol Stevens from LaHarpe IL wrote on October 16, 2016 at 10:45 pm:
I am a survivor! My brain aneurysm ruptured on May 12, 1015. Being a migraine sufferer, I knew the horrible headache I was having was not a migraine. I had gone home from work for lunch, and as I was ready to sit down, It felt like someone hit me in the head with a ball bat. On a scale of 1-10, I told the doctors it was a 20+. I was unable to lay down or sit. My husband came home and took me to ER where they found the brain bleed on a CT scan. My doctor told me a helicopter was waiting to take me to the University of Iowa Hospital. I was taken to surgery where they went through the groin to the brain and put the coil/clip. I was hospitalized 10 days. After home, I continued to have headaches for 1 month until the blood from the bleed was absorbed into my body. I had 6 weeks of occupational and physical therapy and was off work for 13 weeks. I am one of the lucky ones. I have minimal side effects and tell myself I shouldn't be here. Prayer worked wonders. My roommate came in with the same thing but passed away not long after I was admitted. I have a better outlook on life than before. My angiogram at the 6 month mark showed the coil was not leaking and was in place. I was given a second chance at life. Thank you God.
Ashley Naylor from Wichita wrote on October 12, 2016 at 9:40 am:
A good friend of mine lost his wife to a Brain Aneurysm August 10th. She collasped while she was at Crossfit on August 4th and was rushed to the hospital. That following day, she was sent to surgery to repair the aneurysm and it was a success but this event had caused an enormous toll on her brain. Many sections of her brain were essentially "dead" and in the event of her waking up, she would have most likely been a "vegetable" the remainder of her life. So, with careful consideration and her wants, her husband took her off life support. This has hit home with me because it IS true when they say life is too short. Raising awareness is quite possibly the best solution. In some cases, lives have been saved because of pre-diagnosis. This is wonderful! If we can use the tragic events in "our" lives to help others and possibly prevent tragedy, then it's a "win win" for all of us. He's doing as well as he can. He was married for 15 years and they have a three year old daughter. He's an inspiration to everyone around him and her legacy will live on through him and their daughter. I hope by sharing this post helps others cope with whatever situation they may be in.
Jasonja Ward from Rowlett wrote on October 10, 2016 at 11:25 pm:
I suffered a brain aneurysm in 1995, just one week after delivering my only child. It was due to an epidural needle that actually taped my spine, set up a clot, then raced to my brain and ruptured. It reminded me of an atomic bomb going off in my head. Sixteen hours had passed, along with complete loss of vision before I finally had my husband race through emergency. That was on a Tuesday. The hospital took every test imaginable on my brain, finding yet another aneurysm sitting in the center of my brain stem. By that Thursday, my doctor informed me of what happened and that he, along with the several other doctors involved, didn't understand why I was still able to talk and communicate. My brain actually swelled. My doctor did however inform me that I wouldn't survive a surgery, and by all indications, I would be dead by the weekend. Being told that there is absolutely nothing that can be done from a doctor is a lonely, lonely place. However, what precluded me from be helpless was the power of prayer. Twenty-one years later, I'm still here, no surgery of any kind, and the second aneurysm just went away. Dr. Duke Sampson was the last doctor to see me, two months after the rupture of the first aneurysm. Dr. Sampson stated that the second aneurysm had to be removed or if I so much as bump a wall, it could rupture. So on the date of the scheduled surgery, one last angiogram was conducted, however, there was nothing there. I was then released from the hospital and sent home to gain a new life. I'm currently writing a book about my journey as I've not found anyone to date that has experienced the same trauma to the brain as I, and recovered on their own. I totally depended on God everyday and still do. I knew that if woke up every morning and could just breathe, I knew somehow, God was working it all out for me. My daughter is now 21 years of age. I'm a business owner, I'm productive and profitable. I know that my journey is not yet over, so I just keep breathing.
Mary from Newcastle wrote on October 9, 2016 at 5:37 pm:
In 2007 I fell flat on my face, could not move, when I could, I went to bed for 3 days with a headache. I finally went to the ER and found out I had a ruptured brain aneurysm. I flew to the Mayo clinic and they found 2*more. One at the base of my brain and spinal chord connection. I am a survivor with minimal effects. I own my own business and am doing well. My mother died of 5 brain aneurysms