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187 entries.
JeneƩ Avant-Marsh from Georgetown wrote on October 15, 2017 at 1:18 pm:
Hi. My name is JeneƩ from South Carolina. November 2002 changed my entire life. I had a history of what seemed like horrific migraines, and I suffered through them. However, I was 8 weeks pregnant with my first child. I was having frequent headaches with vomiting, but it was all hours each day. A Wednesday night began my nightmare, when the worst headache of my life began. I told my sister nothing would help. By the following Monday morning, my instincts told me I was in trouble. Thankfully, my husband did not work that morning. My headache was so horrific and the worst I'd had in my life, with violent vomiting. I felt a loud pop in my head, and I could not move my left side at all. I yelled to my husband that I needed help, and my vision changed. I knew I was dying. After that I remember nothing; only what my loved ones told me about the events. My husband saved my life by rushing me to the hospital. I was admitted and went into a coma. I was rushed into emergency brain surgery, because of my brain swelling. The doctor told my husband I'd die without it. However, with it I could be a "vegetable" never walking or talking again. He was terrified and alone. A craniotomy was done and my baby and I survived, thankfully. However, it began my new life of learning to walk, talk, to learn everything I had taken for granted. I was grateful to be alive yet not the same person. I had my precious daughter, Faith, in June 2003. July 1, 2003 began my new nightmare. Admitted to the hospital with swollen, blue, painful legs. My new SURVIVOR story began. I had blood clots in both legs, from ankles to my abdomen. Two doctors told me I had the most continuous, the hugest clots they'd seen in their careers. My organs were shutting down and clots moved into my lungs. GOD had his hands on me throughout my near-experiences. I and my daughter are miracles. Life is precious and fleeting, and we love the ride. Never give up.
Michele McMullan from Massapequa LI wrote on October 15, 2017 at 5:16 am:
On 12/24/08 I had a brain aneurysm that left me paralyzed on the right side of my body and confined to a wheelchair (mother of 3). Had the worst headache since HALLOWEEN night. Went to the doctor 2x's complaining of a terrible headache but was misdiagnosed with a SINUS INFECTION! Be your own advocate INSIST on a cat scan or an MRI to find out the cause of your headache.
Sandy I'm going to knock you guys get off my s*** from Fresno wrote on October 10, 2017 at 4:25 am:
My name is Sandy and on October 14, 2014 I suffered a brain anursym.....i was in a coma and given only 15% chance of surviving and my brother was told if I came out of the coma I would be severely brain damaged due to the anursym being in the communicial area of my brain Against all odds.... I came through IT I spent almost a month in ICU after having brain surgery to put a coil in my brain, being in a coma I got to go home and it wasn't till I was home that the enormatity Of what had happened to me. I have some brain damage, short term memory loss. I'm still after 3 years I'm still trying to deal with it. I'm glad the doctors saved me. And all the doctors and therapist's that have been helping me through it all. However it doesn't seem to be enough I cannot seem to get over it, all I can do is keep on keepin on.
Azita Ahdout from Cresskill NJ wrote on September 26, 2017 at 2:45 pm:
March 9/2017 was the day that I almost died and the next day I started a new life . I was just joining my husband in a restaurant when the worst headache of my life struck me , at first I told my husband we need to leave the restaurant and go home so I can rest and take something for the headache but after a couple of minutes I could no longer take the pain nor could I make another move . I was taken to Valley hospital in NJ that is one of the best in brain injuries and I was lucky that it was in the same town as the restaurant we went to. My Dr .Neurosurgeon Dorothea Altschule and the staff on the Valle hospital saved my life that day and coiled my head , I am now a bionic woman ! I am being reminded everyday how lucky I am to survive this horrendous injury that unfortunately many do not survive or have permanent loss of functions as a result of it. Life has many challenges . I hope awareness will educate people not to ignore a headache or family history of brain aneurysm and seek the advise of their doctors .
K.hawkins from Streator wrote on September 20, 2017 at 12:45 am:
I never thought I would experience this my self but I lost my mom in 2013 from a stroke I didn't know what was going on and why she had bleeding in her brain seeing her lay in the bed from 2009 till 2013 she fought for along time if only I would said mom go get check out she would always have frequent headaches but she didn't think any of it she was only 35 died at 38 I'm 24 just found out I had a brain anresyum lol I'm sure I didn't spell that right but its been hard on me I just want to be here for my son but now I see all these messages on here it gives me faith
darlene makins from lakeland wrote on September 16, 2017 at 6:38 pm:
Hello I am a proud survivor that suffered a Brain Aneurysm and a stroke on 9/28/14. I have no memory of how or what happened. All I know is what my family tell me. I just wish this never happened to me because my life is not the same but I am forever grateful to be alive regardless of how I am now. It is such a pleasure to be able to interact with people that may be going thru the same problems i'm facing and being disabled now. I just miss me so thanks for allowing me to post this
Deborah from Holtsville wrote on August 29, 2017 at 11:15 am:
I also suffered a brain hemorrhage in September 2015 I was fortunate to have went to emergency room where they performed surgery and stopped the bleed causing me to suffer stroke
Kaye from Laguna Woods wrote on August 13, 2017 at 3:45 am:
I'm a 70yo female, who had heard about these brain anurisms only about 3yr ago. Thing is when I was a single mom on welfare about 29yo I had the most excruciating headaches over 2days. With no money and no one to help me and no knowledge of how serious this was, I just layed on the couch with the curtains closed and prayed for it to stop. A couple of years later a dr asked me if I had had a stroke because he said my face drooped on one side, neither myself or anyone else had noticed. I said no and that was the end of that. Over the past 5-6 yrs I was treated prophylactically for an explosive headache over/behind my Rt eye. Until I told a new dr (ent) about it and the story about Lisa I had heard on dr Oz. He had me tested and the results showed very old scarring from 40yrs ago! I survived. Sadly, my son got a blood clot in his leg without knowing and it passed to his lungs (PE) killing him suddenly at 43yo 2yrs ago. Leaving overwhelming sadness for me.
Marcella Hutsko from Endicott New York wrote on August 11, 2017 at 9:52 am:
August 27.2000 I was waiting for my husband to return home from work. It was 3.00 a.m. in the morning. he normally worked days but had gone to work for a problem {he was a computer specialist} I called him to see if he was coming home soon. I never stay up this long .I usually am in bed by 10:00 p.m. He told me he would be home soon he was wrapping things up with what he was working on and would be home within the hour. I wrapped up in a quilt and went outside and waited on our front porch for him to come home. He drove in the driveway very soon after that. We went into the house his arm around my waist and fell into bed, both of us exhausted. No sooner had he was asleep I was lying awake listening to him breathing beside me. Suddenly his breathes became very labored and stopped and began again. I shook him saying his name and he did not respond. I put my ear to his chest his heart was beating. His breathing was irregular but I knew something was wrong. I couldn't wake him at all by calling his name . I jumped out of bed went to the hallway and yelled to my daughter to call 911. I ran back to our bedroom checking on him and then grabbing clothes and dressing quickly, I then found clothes for my husband and putting a pair of jeans and a button up shirt leaving the buttons undone for easy access for the emergency responders. meanwhile my daughter came downstairs in her pajamas{she was seventeen at this time} . I told her to get dressed and move our car around the front of the house. She told me the person she talked to on the phone at911 had asked her if she was sure her father was unconscious. We waited for the ambulance time passing .an hour went by I was furious knowing the sooner we got him to the hospital the better the odds of recovery. My daughter and I carried my husband to our car putting him in the passenger seat of our car. It was not easy he is 6 feet tall and weighs 175 lbs. we had to stop a couple of times to rest and start again before getting him in the car then we had to adjust the seat and safety belt fastened. The ambulance arrived momentarily. They insisted we transfer him to the ambulance so they could give him oxygen and monitor his vital signs . I was hesitant but agreed. The men put him on a stretcher, they were surprised my daughter and I could carry him. They no sooner got him into the ambulance he became conscious and tried to sit up he was very loud and argumentative. I went to the stretcher and explained what had happened and my voice and presence seemed to calm him. My daughter and I followed the ambulance in our car to the hospital which is a thirty minute rito a bed and began assessing his condition. Minutes later he was whisked off for an MRI of his head. I sat by his bedside when he returned to the hospital room .Holding his hand he was in a lot of pain. He said he had a horrible headache. The doctor prescribed a very strong painkiller. The Doctor a Neurosurgeon told me he had a serious brain bleed and it was seeping across his brain and he only had a 20 percent chance of dying or living, He asked me if I wanted to have him do surgery to find the bleed and put a titanium clip to stop the bleeding. The other choice was to let him dye comfortably. I chose surgery of course .I didn't want our daughters to loose their Dad. He had to be transferred to another hospital for the operation. An ambulance would take him across town to the other hospital where he was put in ICU. The day passed and my friends brought my other daughter who was away visiting a friend to say goodbye to her Dad . I called his family and our friends to come also to say their goodbyes just in case he did not survive the procedure. Hours later I kissed him goodbye for the last time. We waited hours for him to come out of the operating room and recovery. He had survived but he was never the same again. The man that walked out the door never returned to us again.
Sheri Greenhoe from Formerly from Okemos, MI wrote on August 4, 2017 at 10:29 am:
Three years ago on an unusually warm and sunny June day, I texted a friend just before noon and suggested we have lunch together on a restaurant patio. (Normally I would just have a quick lunch at my desk at a small nonprofit). I drove ten minutes to meet her, even though I still had the stubborn 3-day headache that I attributed to seasonal allergies. (I ignored a moment of blurry vision that morning, which I now know was a warning sign.) We sat down at a patio table and ordered lunch within two minutes. At that point I mentioned my stubborn headache...then everything went black. My friend said I stared straight ahead and started to tilt sideways in my chair. She thought I was joking, then recognized something was very wrong (because her husband had had a stroke in his 30s). She shouted for someone to call 911, and two lunching nurses immediately came to my aid. My friend phoned my husband who was just blocks away--and he arrived in time to accompany me in the ambulance. Paramedics phoned the ER with a stroke alert, so the neuro team was ready for me when we arrived just 5 minutes later. I don't remember any of this. In fact, I don't recall the first 36 hours, during which time a platinum coil was snaked through my femoral artery and into my brain to plug the burst aneurysm. Doctors had told my husband my chances of survival were less than 15%. He called our kids and my siblings, who came from near and far to be at my bedside. He and they took turns sleeping overnight in my ICU room for 14 days. When I was out of immediate danger I was transferred to a step down unit in the hospital , where I began physical therapy. That was made more difficult by my resulting double vision. I was discharged to our home after 21 days, and continued PT, with much help from my husband since just walking across a room was exhausting. Fortunately, my vision returned to normal 30 days after the artery burst, and my coordination and muscle tone returned over time. My neurologist explained that the coil could not completely fill the remaining weak spot, so I am monitored with regular MRAs, and take meds to keep my blood pressure very low. I have ongoing fatigue and also continue to recover from heart failure, which developed simultaneous to the hemorrhagic stroke. I went back to work, but it was completely draining--my doctor recommended I go on disability, but Humana denied my application. I have now retired from full time work, and my new goal is to enjoy and appreciate every minute with my husband, family and friends. They, my doctors and the fantastic nurses, have my enduring gratitude.
Glen S from Northridge wrote on July 31, 2017 at 2:13 am:
I was diagnosed with an brain aneurysm 2-3 mm in size in 2000. I was in disbelief and very scared nit sure what to do. I decided to get a second opinion. That Dr. said well you can have it operated on as you know but seeing your rpt I suggest you have it monitored every 12 to 16 months. Well I spoke to my original Dr. and he said, "yes you can do that but you have the chance something happening, and your time is limited to get to the hospital. " He went on to say, " The procedure is delicate and it is risky, but usually everything goes well, but there is a risk. I decided to happens monitored every 16 months and so far 17 years later nothing is changed. Thank God for that. I do experience headaches and sometimes extremely bad but thinking its a stress headache. It does worry me though thinking I hope this is all it is. One thing I do, do is keep a card taped to my license in case of emergency my condition and contact numbers, Dr, and family. So I'm still on top of things like all of us should be with this condition. Prayers to all who suffer from this.
Melissa Post from Redlands, CA wrote on July 30, 2017 at 10:19 am:
I lost my mom, grandmother and two uncles to brain aneurysms. My mom and I spent a wonderful day shopping before picking my dad up at the airport. The three of us then went out to dinner. About an hour after dropping my parents off at home, my dad called me in a panic. He had just called 911, because my mom complained of a terrible headache. AMR came and rushed her to the hospital. She didn't pull through and passed away several hours later. She was 67. My grandmother was the same age when she died also of the same tragic ailment. My sister, niece and I have now had to have MRI's and MRA,s because we have been told this is genetic. Very frightening.
Cheryl McVeigh from Riverside, CA wrote on July 29, 2017 at 11:49 pm:
On April 22, 2003 I was on my last break at work. My nose itched so I wiped at it with my bent index finger & came away with a minuscule blood clot. I thought I was going to have a bloody nose, which was weird because I hadn't had one since I was a child. I went back to work & finished my shift. As I was driving home I saw 3 palm trees hopscotching & knew I was in trouble. I continued home & when I got there I saw my daughter & son in law putting my 3yr old granddaughter in their car & asked them to wait while I put my stuff in the house so I could see my granddaughter & go over what remodeling was going to be done the next day. When I got inside I started talking to a family friend who is like a son to me & he noticed I was starting to slur my words & moving funny so he told me to go lay down & he'd check on me in a couple minutes. Instead he started to head outside to get my daughter but before he got outside he heard me scream. He said I had fallen & my head was between my bed & nightstand (3-4 inch width). He pushed the nightstand out of the way & carried me out to my daughter to have them take me to the hospital but I started seizing & vomiting so he told my daughter to call 911. Turns out I had ruptured a brain aneurysm behind my right eye which caused both my eyes to pop out. It took 3 different hospitals to find a neurosurgeon who knew how to repair the damage plus 5 days before I was stable enough for the surgery. I was given a 1% chance of survival with no hope I'd ever be a functional person again. When they did a angiogram to verify the bleeding had stopped my second aneurysm was discovered but it blew before they finished prepping me for my next surgery causing even more damage. Then when they did another angiogram to check the status of both aneurysms they found the 1st one blowing up again so back into surgery I went. I was in a coma for over 4 months & I've had a total of 4 brain surgeries, had to learn how to talk, walk, eat by myself, etc all over again but for the grace of God I survived. I returned to work before my doctors wanted me to but I was threatened with termination if I didn't so I felt I had no choice. I still had minor children, a mortgage & bills I was responsible for & I was a single parent. The first responders took turns taking care of my children,which I can't Thank enough, and still check on me to make sure I'm doing good. Sadly, I ended up losing my job when SBC bought out ATT because I had one too many seizures so I lost everything, my house, custody of 3 of my granddaughters. I now have multiple other health issues & can no longer work. Luckily I have a fabulous Mother who is also my best friend whom I live with & we take care of each other & take each day as it comes. I hope no one else has to ever experience what I've gone through. Headaches and/or feeling weird are not a joke & are definitely symptoms that should never be ignored. I don't care how good someone's health currently is. Know your body & if something doesn't feel right get yourself checked out.
Cathy C from Santa Clarita wrote on July 26, 2017 at 9:06 pm:
My 10mm aneurysm was right behind my left optic nerve. I had to be persistent with diagnosis because my PCP thought my chronic "sinus pain" was no big deal. I was 44 yrs old and my successful clip ( so big it took 2 clips) surgery at Keck USC was almost 9 yrs ago! I'm as vital as I was pre surgery and encourage anyone who has mysterious head symptoms to be very persistent!
Zandra Y Hayes from Chicago wrote on July 23, 2017 at 7:56 am:
September 6, 1996 I was 41 years old and very unhappy with my job. I said my prayers that night and asked God to allow me the next day off. Withing a few minutes I heard what sounded like a small balloon pop inside my right ear. I had been sitting on the side of my bed and immediately began falling to the floor. I asked God if I was going to die. His voice was clear as He said, "No". I lay on my bedroom floor for almost 7 hours periodically reviving to look at the window. My plan was to call my mother when morning came. Finally the sun came up and I arose feeling as though a thousand ax blades were hitting me in the head. Not wanting to risk passing out in the shower I took a bird bath and called my mama. She arrived and I casually walked to the car as she scolded me for causing her to cancel her plans. I told her I wasn't feeling well and wanted to go to the hospital. I kept trying to rest my head on her arm and she kept removing it. Arriving at the hospital she saw some friends and I walked into the ER while she visited. I gave my history with my left arm draped across my head and after handing over my insurance card was told to have a seat. At 6:30 a.m. there were many people there from overnight illnesses and injuries. The Social Butterfly finally came in to check on her baby and when I saw her I began crying and finally told her that I had suffered an aneurysm the night before. I had been strong long enough. She went to the nurses and demanded that I be treated immediately. They didn't believe I had suffered an aneurysm hours before because I was walking and talking. Because of the Social Butterfly's aggression they agreed to do a CT Scan. I was given a shot of Demerol and immediately felt no pain. While lying on the CT bed the neurology department went crazy. Doctors and surgeons were looking at the monitor and looking at me. They were asking me a lot of questions and putting their flashlights in my eyes. I didn't mind, the Demerol was working. Soon I was being placed in an ambulance to be transferred to another hospital. I was embarrassed to be in an ambulance and the possibility of being seen by my co-workers terrified me. At the new hospital almost everyone I've ever known came to see me before my afternoon surgery. Everyone was crying and I kept telling them that I wasn't going to die because I had asked God and He said so. I later learned the surgeons didn't hold out much hope for my survival because the artery was totally severed. Following the surgery I was in a drug induced coma for ten days and came out when my sister arrived in one of my favorite jackets. She had not only been in my house she had gone through my clothes and she knew better. I was released from the hospital after a month with no hair and a terrible headache. I was readmitted after gobbling pain medication for three days. Doctors learned I had hydrocephalus - excess fluid on my brain. A shunt was placed in my head and I looked like the Planter's Peanut man. I was again released and in addition to being bald I had a long line of staples in my head. The Social Butterfly named me Zipper Head. While recouping at my parents home I was sneaking pain pills because I had a lot of pain in my abdomen and a high fever,but I didn't want to go back to the hospital. After several office visits during a four day period including one to my gyny I was readmitted by my neurosurgeon. Initially no one wanted to believe the shunt had caused the illness. At one point they questioned if I had VD thus the gyny visit. They eventually reopened the incision in my abdomen and discovered what looked like cottage cheese on the shunt tube. Someone had touched it with unclean hands. I was sedated and it wasn't me. The shunt was removed and an external capsule was placed on the nightstand next to my bed and for the next month I was on flat bed rest. Maybe I was being stubborn or maybe I truly forgot how to digest food, but I couldn't eat. I cried a lot and the more I cried the more fluid went into that nightstand capsule. When I calmed down the constant drip would stop. After another month the tube was taken out. I had elected not to have another shunt, but take Diamoxx to removed the excess fluid. Instead of a rehab center my parents decided to take me into their home. The first night I took a bath and looked in a mirror for the first time in months. A skeleton stared back. My wails brought my mama to the bathroom. She wrapped me in a towel and assured me I would be fine. I sobbed as I asked my weight. I was 83 pounds at 5'10". I had reached 146 pounds, a high, days before the aneurysm and it was gone. I had no muscles nor nutrients. My mama gave me soup broth, a pain pill and other meds and put me to bed promising the next day would be better. She woke me at 6:30 the next morning helping me wash and dress. She prepared my breakfast and made me walk the house twice before I was allowed to rest. After a week she no longer made my breakfast and added more exercise to the routine. I was allowed a one hour nap at 11:00. This was worse than jail, but it was the best rehab for me. She would laugh at me when I talked like a toddler, throw tennis balls when I walked on my toes like a toddler and drew stick figures of me complete with the lines on my bald hair when I walked bent forward. It sounds cruel, but it was all about her love for me and her desire to see me whole again. I was a manager at both IBM and Blue Cross / Blue Shield and leaders couldn't walk bent over. After three months I returned to my house where she came often to ensure I was doing okay. I got home and stayed in bed depressed until my shoulders locked and I had to be admitted to have them manipulated followed by a month of physical therapy. I also had to hear her tell me how she knew this would happen. In September 1997 I returned to work wearing a full sweatsuit under my size 6 pantsuit. People stared and made cruel comments about my looks. I kept going and soon the sweats came off and the size 6's became tight. In June 1998 my father died and at the funeral I wore a size 8 suit and my hair was to my shoulders. I was off all medication and when I spoke at my dad's service it was about God's grace and mercy. A second aneurysm was clipped three years later and as I prepare for my 21st birthday I still praise God for his love. Both parents and a sister have passed and I know the only purpose for my being is to complete the work I was put here for. I live each day and share my story frequently. The only evidence of my journey is a small scar on my right hairline. I work and although I began drawing one of my pensions this month I don't see retirement in the near future. I turned 62 last month and I feel good. Blessings to all!
Tim DeLuca wrote on July 22, 2017 at 1:09 pm:
I am an brain aneurysm survivor for me it was a bad pain when I coughed like someone finger jabbing you in the head
Kristy Paoni from SPRINGFIELD wrote on July 22, 2017 at 8:39 am:
Hi my name Is Kristy paoni i have seven child eh and a wonderful husband of 23,years and a grandmother of two I was diagnosed in January of 2017 with two brain aneurysms one is 8mm that one is his located in the frontal lobe of my brain the other one is on my bias nerve leading into my brain spinal cord connected to the cerebellum as of today which is July 22nd I will be having brain surgery on one of them within the next two to three weeks and go back for the second one a couple months after that I'm going to Barnes Jewish Hospital in St Louis they are wonderful but I seen this on the TV commercial and just want more insight I'm definitely scared of the surgery but definitely don't want to sit around and wait for a rupture any insight or help on this and knowledge would be great I do see a doctor you don't always get the questions answered because you forget when you're there
Lillian Loggans from Hattiesburg, wrote on July 10, 2017 at 3:11 am:
December, 2012 At the age of 80, I was riding a cart in a local store and pulled up in line to check out. I realized that the people seemed to be moving away from me and my vision was seeing blurred and my vision was blurred. I ask a lday to get a manager, that something was happening to me. I got nauseated and could not find my niece, who I lived with, so ask for an ambulance to be called. I went to hospital and in ER a cat scan was ordered. I was admitted and the next day my Internist came to tell me I had a basilar artery aneurysm. Week of Christmas I ask to just be discharged and I would discuss it after Christmas. I have a medical background so I understood what it was. I did return and was referred to a Neurologist and from there to a Clinic in Memphis, TN. The Surgeon did not advise any type of surgery. They felt the effects of the surgery could cause a stroke or storke like problems and I did not want that to be the way I lived my time. Some days I wish I had the surgery but God has given me peace .
Caroline Power AKA Carolyn from Seattle WA wrote on July 8, 2017 at 12:45 am:
Nov 21, 2014 I was driving home from work and all of a sudden I heard a horrible sound like a train and then a sharp pain up the back of my neck. I freaked out I drove and the pain in my head was like someone took a stake and was slamming it in my head. I stopped my little 1964 VW in the middle of the road and cried like I have never cried before I tried to call someone but it wasn't working. I got out of my bug and begged the person behind my car to call 911 I knew I was in trouble and he did. I got back in my car and cried and begged God and my Dad who died 3 weeks earlier to help me. All of a sudden I closed my eyes and saw the brightest light and the feeling of calm come over me. I was leaving life and then a knock on my window and the medic's helped me out of the car, apparently I had pee'd myself and I wanted to throw up. They attended to me and rushed me to Harborview Medical center and I don't remember any of that. I woke up several days later to learn what happened I had a SAH and had 50 percent chance to live. It took me only three months to recover and I was back to work working for the federal government. Someone was watching over me.
Deanna Hogan from Pleasantville wrote on June 21, 2017 at 12:39 pm:
Here is a positive story I'd like to share. I suffered a ruptured brain aneurysm 6/12/2012. I always hear stories about all the help that is out there for those of us that have had this happen to them. In our small town people have fund raisers to help victims all the time. This happening to me was bad enough and we almost lost our home over it because of bills. Almost a year later to the date my husband suffered a massive heart attack. Now our only source of income was no longer coming in and I wasn't working at my daycare much either. Not one person or one charity was there to help us when we needed it the most!! It's now 2017 and we are still fighting to keep what is ours!! I, even though it's hard, still watch a few kids. They are very forgiving if you forget something. But, the real hero here is my husband, Glen Hogan. This man has had 3 major back surgeries, a triple bypass and he works 6 days a week 11-12 hours a day so we get to stay in our home. Yes we still struggle with paying those medical bills. But my hero has given this ruptured aneurysm survivor a chance to be normal. Love you Glen Hogan!! Thank You, Deanna Hogan