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Christina CONTANT Christina CONTANT from Corona Del Mar wrote on September 21, 2019 at 2:43 pm:
FYI. Check this website; HHT.org It is a vascular disease. .(50/50chance to pass on) HHT HAS MANY CENTERS OF SPECIALTY AROUND THE COUNTRY AND I URGE EVERYONE WITH AN AFFECTED RELATIVE, TO GET TESTED AT ONE OF THIS CENTERS.. PLEASE LOOK FOR THE NEAREST CENTER..... GO TO: ”HHT.ORG” I HAD AN ANEURYSM THAT RUPTURED AND MY SON AT AGE 6YRS HAD A HEMORRHAGE. We are both lucky to be here and healthy. Now we are very active members in HHT. I DO NOT KNOW WHICH OF MY RELATIVES HAD HHT... BUT IT COULD SHOW AS LITTLE SIGN AS MIGRAINES...Your organization is a blessing. HOWEVER, SOME AFFECTED PEOPLE MIGHT HAVE HHT AND NEED FUTHER TREATMENTS.....AVM’S NEED TREATMENTS since they show up in other organs and can get treated if getting to an HHT Center. Best wishes!

Our Foundation

The Lisa Foundation, a 501 (c)(3), is the leading private funder of Brain Aneurysm initiatives that directly or indirectly support awareness, education, research, and survivor support in the U.S.

Our Mission

To foster a national dialogue and understanding around Brain Aneurysms and drive better patient outcomes through pioneering education, research, and support.

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The Lisa Foundation

Administrative Office & Mailing Address

P.O. Box 13

Frankenmuth, MI 48734

info@lisafoundation.org

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