In May of 2004 I had two brain aneurysm surgeries one coiled and the other coiled. I went for a physical and my doctor noticed a birthmark on my chest and she sent me for a brain MRI because of the type of birthmark I have she wanted to make sure I didn’t have tumors in the brain ? I got a call from her after the MRI telling me that I did not have tumors but had two aneurysms in the optic nerves behind my eyes ? the only symptoms I had was pain in my eyes, the pain was so severe I kept going to my eye doctor who couldn’t find anything wrong. I just want to share my story because today a friend died at the age of 42 and she not only had pain in her eyes but also had severe headaches. I need to share my story and help people. I was lucky because if my PCP did not send me for the MRI I would not be here today.
I am told that at the end of a speech I was giving at the Pacific Club, I passed out and then sat down in a chair. I was rushed to a hospital. My good fortune was at the time I arrived, there was a staff meeting for surgeons. My vitals were stabilized in the emergency room. I then went into surgery. I am told that during surgery a hole was drilled into my skull to drain the blood. A Cather was inserted into a vein in my thigh and the surgeons were able to thread a device through my vein to my brain where the coils were used to seal the injured area. A tube was then inserted to drain the blood to my backbone.
I remember none of this, but a friend who went with me to the hospital has told me what happened. At first I had a caregiver who would arrive at my home to take me to the gym. But, after learning to walk, I was able to pass the written and driving exam and earned my driver’s license that is restricted to prohibit driving on freeways. I no longer play golf but today I played competitive chess at the local chess club. I tried to swing a golf club but was unable to keep my balance. I now walk with a cane and am looking for an opportunity to help others who I could serve. For example I volunteered for the “friendly visitor program”, am an active member of my church.
Every day I wake up and ask myself this question. I am nothing special. I was just a workaholic accountant before my life changed. On December 20, 2010, while on vacation in Las Vegas with my husband and two close girlfriends having a good time, my life changed. I had a cerebral hemorrhage with a hemorrhagic stroke. I was lucking to be in a public area in a casino and was near a major trauma center in less than 30 minutes.
I was 59 years old, 6 weeks shy of my 60th birthday. Healthy normal female. I was lucky because at first because of my age they thought it might be a stroke. But when they took CAT scans they saw the intracranial hemorrhage. I was lucky again because I had a wonderful doctor that had to stop the brain bleed by having surgery through my groin area to stop the bleeding in my head. It worked. But I was left in a coma for two months weeks (natural not drug induced) because of the brain trauma at Sunrise Hospital in Las Vegas, Nevada.
While in the coma I had basal spasms that should have been fatal. I also had two blood clots that traveled into my arm and leg. They had to surgically implant mesh to break up the blood clots. I also had a blot clot in my lung. They call this an embolism and was treated with antibiotics to treat the pneumonia it left me with.
When I started to come out of the coma into a comatose state I couldn't talk, stand, eat, know my love ones, everything in my mind was wiped clean. I had a tough road through multiple hospitals, rehabs, doctors, nurses, etc. that help me come back. I was flew back to New Jersey and was at JFK Hospital in Edison, a hospital that had a good brain trauma center. It took 7 months before I learned how to drink a little water with supervision. No one knew if I was going to get better, since I was so unique. Even my neurologist in New Jersey, Dr. Thomas Stenakye was a pediatric neurologist. No one really knew what caused it, or what I would be like
It is now years since that day. I am writing this letter to you. I can read, cook and even drive locally. . My husband says I am about at 80% which is better than most people at 100%. I am reliving my life twice. My memory from 20-30 years ago is crystal clear. I remember old addresses, telephone numbers and events. My memories are so clear. I wonder why I was saved and I lost so many good friends to cancer at a young age.
Since I've been home, the biggest problem has been the crippling fatigue - although I do have problems with short-term memory, face recognition, concentration and something called "divided attention". I also had problems finding the right words for things. I have vertigo all the time. My cerebellum was damaged and I have vision problems because of optic nerve damage. I am always dizzy (vertigo) and nauseous. I see flashing lights and floaters. I will never be normal.
I lost three years of my life I can never get back. I missed 3 years of my 7 year old granddaughter and 4 year old grandson and the last 3 years of my mother's life. I lost income. I also have caused my husband and sons with terrible grief, pain, financial problems and frustration.
I am not religious or spiritual, but I think I am alive and getting better every day because I do not want this to happen to anyone else. I still have cognitive difficulties, and vertigo due to the brain trauma I went through. I am disability and receive social security disability and long term care insurance payments.
I have terrible flash backs of not being able to use my legs or arms. I couldn't even scratch an itch or brush a fly off my face. I do not know how people live like that. I have flash back of being in the coma. Of pain and modesty. I remember everything in the coma. I felt hot and cold, wet and dry, heard voices but I was too tired to open my eyes.
The only time I was in the hospital was to have my children. The only drug I took was Zocor (Simvastatin) I believe these drugs caused this to me. You can go online and see many articles that state it. I was too old to have an AVM.
Sept 21 2018 I was brought to the er. I remember nothing. Drs didn't know what I had. After a week they found 6 brain aneurysms. I ended up with 6 mini strokes on my right side. Sept 26 i was having seizures and died. I don't remember 2 weeks of my life. Was in the ICU for a month. Still not feeling good but have to carry on
My mother story began 12 years ago when she started having issues with her head. She kept going to doctors upon doctors and nothing was working for her head. They told her it was anxiety they told her she needed to go to a chiropractor but nothing was helping. 5 years ago in May my mother suffered it brain aneurism. She said it was probably one of the scariest moments of her life. She was at work as A-day care director, and she started getting the worst headache of her life and so much pressure on her head. She was rushed to the hospital and and luckily 1 of the children's fathers who was a nerosurgeon saw the name and immediately came over and said don't worry we will take care of you. She was in the ICU for 2 and a half weeks. And luckily she is alive and she is also passed the 5 year mark. I am so grateful for the doctors at Buffalo general hospital in Buffalo New York they saved my mother's life and I'm so grateful for them.
Hello I am a survivor of 2 aneurysms. The first one was when I was 27 years old. I walked up my stairs after a long cold day of work bent over to take off my shoes and it burst. I was rushed to one hospital. After being there for 6 hours I was being mixed and was told the hospital did not have the facility to take care of my problem. I was taken to a wonderful hospital where they did my surgery .. They had to open my skull and clip it. I lost the use of my eye for 6 months but got it back. So very Grateful.. My second time was while in vacation in Italy Set. 14 2018.. Still in shock that after 2 Operations and a month I. The hospital I made it back home and had to have yet another operation ... All that is left for me to say is I am a very lucky women to have survived this 2 times. My friends and family joke thT I am a walk g hardware store with 2 metal clips, 2 platinum coils, and 2 platinum stents in my head... I do have some deficits but I still have my sense of humour and my life. GRATEFUL.....
Onin September 2011was only 14 years old I had all of the basic symptoms of an aneurysm my mom took me to the ER where they told me it sounded like i only had the flu and itd have to run its course well I continued throwing up still had the worst headache of my life and blurry vision for the next week my mom took me to my primary care doctor where he said it sounded like I had a bleeding aneurysm so he sent me back to the ER for a cat scan where they found I had a minor brain aneurysm that had been slowly bleeding for the past week they decided to try and coil it so they didnt have to perform brain surgery to someone at my age that only worked about 80 percent before they had to stop surgery well then on November first I had all of the same symptoms plus double vision so I was rushed back to the ER where they did a cat scan where I had a massive brain aneurysm rupture and was only minutes from bleeding to death I was rushed in for emergency brain surgery and because of the coils from the previous surgery if caused a blood clot and I then suffered a major stroke causing me go now have been partially paralyzed on the entire left side of my body for the past seven years and permanently legally blind
On December 4th,2018 my mother died from an aneurysm she just kept complaining about headaches and then she blanked out and my step father rushed her to the hospital and that’s when they explained that she had a bleeding aneurysm so they air lifted her to another hospital where they performed sergury but they said they couldn’t get her pressure down and she died she was just 51 she had high blood pressure and sugar my life will never be the same
I have been and operated on at the Mayo Clinic in Jacksonville, Florida. I had approximately 9 surgeries on my Spine and base of my Skull. I have been on over 46 medications, to try to relieve some of my head pains. I then went to 23 or more -- (acertain type of Dr.) But have been to probably 56 different Doctors. I have done things to my body, head, scalp that I do not wish upon an enemy. I have had things shoved into my skull, under my scalp, trying to get rid of my head pains. I am currently on only 2 medications but I am unable to be ...a human being, yet still, after 9 years of HELL!
Thinking that my Trigeminal Neuralgia was getting worse, I went to my primary doctor who has been wonderful and knowledgeable with Trigeminal Neuralgia. He set me up for MRI, two denials later, I find myself getting a emergency appointment with a neurologist. I didn't know why as I wasn't told and when neurologist office offered later appointment, my doctors office said, tell them you have an aneurysm! So I found out over the phone. Found out later it was missed by two neurologists and had it since 2004. It is 7 mm , had an Angiogram in September and am now on a wait and watch with MRI in a year. Neurologist said it is stable and I do trust him , but this thing is in me and living with both the aneurysm and Trigeminal Neuralgia is hard.
I am a survivor it happen at work it hit my forehead I can smell and taste every thing in the air it was so intense I almost blacked out I fought it then I blow it off the following week it hit me again this time vomiting but when it hit it was like a spray in side my head its hard to describe the feeling I was blacking as I was walking as soon as I felt better I when to the immediate care I told the doctor my symptoms she was not happy I should have gone to the emergency room that she was going to call me an ambulance I said no ill drive so I did the doctor I seen at the emergency was confused I should not be walking or talking with the symptoms I had a half hour questions I told him I feel fine now and told he was going to let me go but if this happens go to an emergency room well I was waiting to be check out when the nurse shows up and says the doctor wants to take a cat scan will that be alright I say yes as soon as they put me in the cat I was vomiting the nurse asked me if I was closterfobic I told her no and again she asked they put back in my room 20m later the doctor shows up says I have bleeding in the brain that and that they do not have a neuro section and that the other hospital is full so he sends to the 15 miles away and there are three doctors are waiting for me I get there they tell me first we will coil if not a clipping I did not now what to think well they took me in I woke up i called for my wife found its been a week since the operation they I notice I cant see out of my right eye hours later my wife and doctor say I had three brain aneurysms he clipped the first it was 4 hours then he found a second it took 10 hours to clip because he tried not to push on my brain any more and tried to go around my optical nerve but he did touch it I found my self with staples another hole in my head and spine but in three weeks i was back home but cant left any more then ten lbs. because of the clips and the 3rd they are going to coil the most painful thing is the pstd and anxiety I could not sleep for weeks and my eye I 10 percent thru it the rest is like electrical cloud it still drives me nuts but at times it feels like I have both eyes this all started on 2014 feb 4
Hello my name is Connie and I am a brain aneurysm survivor. I experienced it on my twin daughters 31st birthday November 8, 2017. On the morning of that day I got up not feeling well. As every morning I reminded my teenage son to make sure he locked the front door as he left for school but because I wasnt feeling well I refrained from reminding him to do so. He kissed me and shut the door.
As I do every morning I check to ensure he locked the doir and then go into the bathroom to bath but because I began feeling worst I changed my mind and went back to lay down. As I laid down the room began spinning and God told me to get on my knees to pray. While I began praying God also told me to reach for my cellphone to hit 0, so I did. Well, thank God I did. I woke up a month later to see that I was in a hospital. It saved my life and so did my son. First he left the door unlocked which gave the paramedics access into my home and when he discovered my car was still there and furniture moved around he contacted his dad to tell him. When my husband got home he contacted my job to find out that I never showed for work, which was uncommon and through a neighbor told him they seen someone taken away by ambulance.
I suffered a ruptured brain aneurysm and so grateful God has placed all the medical professionals, family and friends in my life. Still I am recovering and looking forward to enjoying my life.
I am a survivor my anurysm happened this year 2/18/18. Had the worst headache for one day then it subsided, I went to the ER only to be told I had a sinus infection then two days later I had double vision after putting up with this for 2 days I returned to the ER and was given an MRI and CT scan where they found an unruptured aneurysm. The doctors said a thick blister was covering it and that's what prevented it from bursting. I had an embolization where it was coiled and a Stent put in. I lost the use of my right eye for 4 months but was so happy when my vision returned. Although I suffer from anxiety and mild headaches I am truly thankful to be alive. I was hospitalized for 5 weeks and thanks to the great care I received from the consultants and nurses I am slowly on the road to recovery.
I was attending a famous party and some large decorations hit me in the head.
I was in and out of a coma for a week in Intensive care at the hospital.
I had some bleeding of the brain. I was sent home without treatment?
A few months later I still had such bad headache's, I was sleeping all the time. almost like I was in a coma again.
A friend called the doctor and related my condition, I was taken for MRI. Two hours later I had brain surgery for Brain Aneurysm.
"The Doctor said if I had not come in when I did I would not be here."
The Doctors I talked too. . . will not admit it? but I feel A bad TBI brain injury can possibly cause Brain Aneurysms?
On January 18, 2006 while taking a shower before work, I felt a very sharp pain in my right eye. It felt like an ice pick stabbing me in the eye. Next thing I know I'm on my hands and knees on the shower floor. I got up, got dried off, got dressed, fixed my hair, then called my husband who was working out of town at the time and told him what happened and that I was going to go to the navy hospital about 12 miles away. I didn't know what happened but I knew not to lay down. I called work and told them what I told my husband. I drove to the hospital, not smart but didn't know better, and told them that thought I passed out in the shower. I was rushed to have a CT scan and that's when they saw that I had a ruptured brain aneurysm and my head was full of blood. I was transported to a hospital downtown to see one of only two surgeons who knew about aneurysms in the whole state of Florida. He told me what was going to happen and how dangerous the surgery was and all I wanted was the headache to go away so I didn't care. I don't know how long the surgery took but I have 3 coils in my head and the bleed was stopped. I spent 9 days in intensive care and 2 days in a regular room before I could go home. I was out of work for 13 weeks. In my 6 month check up the CT scan showed a second aneurysm. It was too small to do anything about then so I was told to get a CT scan every 9-12 months. That was almost 13 years ago and I still have the 2nd aneurysm. The latest CT scan did show some growth but still too small to fix. I have no side effects but I am taking 2 different blood pressure meds and a handful of other meds since the rupture. I always had headaches but not like that one so now I take better care of me and I don't let anything raise my blood pressure because that can make the 2nd aneurysm grow. I have a guardian angel watching over me and I thank God that I'm alive to see my grandkids every day.
I am sitting here today with two in my brain. July 2018 the docs went in to do a stent and coil process called ELVIS through my groin. It did not work. They tried entry through my left arm. No go. One is a 5cm broad neck and the other behind my right eye at cm. I keep myself very aware not to stress myself by lifting too much and being aware of my head positoin. A walking time bomb I am. Three years ago a sister had one bleed and survived wonderfully! We both have a kidney disease and sure enough both of us have aneurysms. In 2001 my brother in law (of same sister) died of an aneurysm just when the coiling process came out. I'm keeping the faith.
I had bilateral aneurysm this year and is has I have surgery. coil both of them on July 12 2018.
I lost my 72 years old mom on June 2002”
as a result of a ruptured brain aneurysm
My sister never wake up from aneurysm
Thank you for your faoundation to help awerness.
Ok third time's the charm. So I had my aneurysm in 2005. It all started normally I had been suffering migraine headaches after at mva in 1988. I had recently married and was at the clinic on base (my husband is military) for a normal check up. The PA suggested I have an MRI which I did only to find out the next day that I had a 4cm aneurysm at the junction of my left optimistic artery and corerad artery, my surgery was not long after, but I had been given the best neurosurgeon in the southeast, at MCG in Augusta Ga. I'm still alive not only to the Lord but to all those He put in my path to heal me.
I want to thank you for bringing this condition to the world, because a lot of people don't understand.
Hi is was April 2004 and I could not go threw another day with this headache.so I went to the e r as my doctor directed me and bam was admitted to the hospital had two brain aneurysm went to have surgery and thank God iam still here it's now 2018.
In October of 2015 my mom suffered her 1st brain aneurysm....she survived...they coiled (13 coils) and she went on to live an adjusted lifestyle but overall extremely lucky and grateful she came out for the most part in tact and functioning amazingly well. Fast foward to summer of 2017 and she had a 2nd aneurysm just off the opening of the original site...again she survived...I know CRAAAZY!!!....this time they actually opened her up and performed the clipping procedure... remarkably she is still with us and functioning at pretty much 100%. She had minimal to zero warning signs either time but looking back we could have possibly recognized SOMETHING had we known more about aneurysms....there was some personal stress in her life prior to the 1st one....she did mention the tingling tongue sensation but always kind of dismissed it...and had always suffered from headaches but once the aneurysms bled those headaches she described as unbearable...had she not gone to hospital right away either time she would not be with us today....1st time she bent over to pick up her purse and the 2nd time she rolled over in bed....simple movements of every day life. She was a smoker for many many years and the doctors advised that should she start smoking again after the 1st aneurysm she would surely suffer with another and surviving 2 is almost impossible. She stopped smoking...one of the greatest gifts of her having gone through these ordeals. The trauma has had life long effects of course, she has some memory deficiencies, is afraid every day of it happening again and has suffered other minor changes however overall we have been so incredibly fortunate to have more time with her and to take each day as a true blessing. My heart aches for those who have not been on the winning side of these disastrous little beasts....I send you love, light and strength as you grieve your loved one.